Dystrophic Epidermolysis Bullosa Research Association (DEBRA)
Title: Epidermolysis Bullosa: Life-long Wounding and Management
- To recognise different types of EB and their outcomes
- To understand the principles of care in the newborn infant
- To appreciate the complexity of wound care in the presence of non-cutaneous complications
- An introduction to EB care in the UK
- Care of the newborn infant
- The challenges of wound care in this patient group
- Jackie Denyer, EB CNS, Team Leader, Great Ormond Street Hospital, London, UK
- Jane Clapham, Lead EB Nurse Specialist, Guy’s and St Thomas’ Hospital, London, UK
- Annette Downe, EB CNS, Guy’s and St Thomas’ Hospital, London, UK
DEBRA International is a worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition epidermolysis bullosa (EB). DEBRA’s vision is to ensure that people living with EB have access to the best quality support and medical care, while also driving the development of effective treatments and cures.
Please find more information about DEBRA here.